I got a diagnosis today after trying to figure out what’s wrong with me for twenty years. My grandmother died at a relatively young age of lupus complications and she had to end her whole career at 36 because she was so sick. I’m 27, and I am terrified I’m going to end up like her. Her quality of life was absolutely awful for the entire time I knew her. I don’t want that for myself.

  • Prok@lemmy.world
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    2 months ago

    Can’t speak first hand but someone I know has it. Medication and some lifestyle changes keep it manageable for them. I don’t mean to lighten the weight of it too much, but I wish you the best.

    • roofuskit@lemmy.world
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      2 months ago

      As someone with Lupus I can echo this. Now that you know and can get tailored treatment it’s the start of getting better not worse.